Bloggers open themselves up to a wide range of criticisms. It’s just part of the job when you put yourself out there for the world to see. Chronic illness bloggers do so to an even greater extent. We open the book on deeply personal subjects, and delicate medical conditions. Some bloggers just journal their chronic illness experience. Others, like me, try to share tips and tricks that have worked for us, so that more people living with the same condition might get relief as well.
I got a comment the other day that really upset me. The gist of it was that the commenter had never known anyone with fibromyalgia to be able to do my suggestion A, let alone B or C. The commenter regarded my tips and tricks as outright laughable. I have been living with a fibromyalgia diagnosis for 15 years. It is my life on these pages, and the things I share work for me or I say they don’t. Commenting to me that the tips I’ve shared are laughable is just plain rude.
I’m trying not to take it personally. After all, the commenter doesn’t actually know me. Depression and anxiety make it hard to do, but I am trying. The commenter could be at a different part of their fibro journey than I am. Perhaps our symptoms are different; No two cases of fibromyalgia are the same, after all. People are so fast to judge others, and it’s just not cool. None of us know what anyone else is going through in their life, and the best way to proceed is always with kindness. Whatever the case, whatever the commenters deal is, I don’t hold it against them. That doesn’t mean that it didn’t hurt.
My approach to fibromyalgia includes never giving up. I am always fighting this disease, every single day. I do my best to take care of myself on many different fronts. If my doctor doesn’t have great answers I have to be my own advocate and always keep searching. Many times answers come from non-traditional medicine and lifestyle changes that go a long way to mitigate my symptoms. A large part of this blog is about just that, changes in lifestyle that allow me to live fully despite my chronic illness. I don’t want a blog that only appeals to other people with fibromyalgia. There are millions of people in the world who are perfectly well that can benefit from the same small lifestyle changes that help me daily with my chronic illness.
My purpose here is to help others find wellbeing, no matter what hand they have been dealt. Simply to be kind and have the courage to share my journey. It’s not nice to judge and ridicule others struggling with illness. If someone’s journey is different than the one you are experiencing that doesn’t mean that they are less, or don’t know what they are talking about. So if you can’t say something nice, just don’t post.